I want to see what happens in life. March 04, 2022 "Disability is not the word that should be used to describe what Claire had because she turned it into her platform. Growing up, I didnt have any role models that were sick that were doing anything with their life, ever. You are an inspiration and brought joy to many. She had upwards of 30 surgeries; she died from a massive stroke following one of her transplant surgeries. At a TEDx talk she gave last year, Claire made a point of saying how cystic fibrosis helped give her a quality of life. "She listened to the risks and the long list of side effects and emerged unfazed. Claires Place Foundation is named in honor of Claire Wineland who lived with CF her entire life and passed away at the age of 21. Claire Wineland, social media personality who spoke about living with cystic fibrosis, died Sunday, Sept. 2, 2018, of complications after suffering a stroke following a double-lung transplant,. When it came to her care, she knew her body best what worked for her, what didnt and how far she was willing to go. It also complicates digestion, affects the pancreas and other organs and, eventually, leads to respiratory failure.There is no cure, but dutiful breathing treatments -- which eat up hours each day -- can help with symptoms and complications. [2][3] She died from a blood clot one week after receiving a double lung transplant at the age of 21. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed. The 'My Last Days' Subject Is Helping Others Live Their Best Lives", "A lung transplant gave her hope for a longer life; now her family prays for 'another miracle', "What I - and the World - Learned from Claire Winland's Passing", "AARC Congress Announces Claire Wineland As Keynote Speaker", "breathless choir Claire's Place Foundation", "I stopped doing the Clairity Project because I got screwed over", "Claire Wineland, inspirational speaker and social media star, dies one week after lung transplant", "Meet the 2015 Teen Choice Pro-Social Honorees", "Nonprofit & Corporate Citizenship Awards 2014", Claire's Place Foundation: Official Website, https://en.wikipedia.org/w/index.php?title=Claire_Wineland&oldid=1133052069, 21st-century American non-fiction writers, Short description is different from Wikidata, Creative Commons Attribution-ShareAlike License 3.0, This page was last edited on 12 January 2023, at 02:13. The US-based Cystic Fibrosis Foundation says more than 70,000 people live with the condition worldwide, She started a YouTube channel in which she spoke about her experiences, Cystic fibrosis drug cost 'should be lowered', Jeremy Renner TV show poster edited after accident, Maximum two drinks a week, Canada guidance advises, Baby among six killed in possible cartel hit in US, German police deny Greta's detainment was staged, US porn star declared unfit for sex crimes trial, Keep cake away from office, says food adviser, Graceland estate will stay in Presley family. She founded the non-profit Claire's Place Foundation to provide emotional and financial support to families living with cystic fibrosis. Youll be missed deeply. Claires gift is huge, I want your family to know that your daughter is a hero.. Direct quote published by online women's magazine Glamour three days after her 2018 passing. However, her illness forced her to leave the platform in 2017. A quarter of Claires life was spent in the hospital. On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. "Claire was able to save the life of two people, her right kidney was transplanted to a 44 year old woman in San Diego, and her left kidney was transplanted to a 55 year old male in Northern California. She had a younger sister named, Ellie. I learned to deeply hate having my picture taken by professionals because there was always a need to make me look childlike and innocent- lacking in anything sexual or appealing. Its so much easier to believe that sick people are cherubs- held in perpetual youth and innocence- who simply dont understand the truth of their condition because they are living up in the clouds. Some people worried that she'd waited too long and wouldn't be given the chance at continued life.But Claire took on the evaluation process to get on the list with laser focus. She also addressed her views on society's notion of attractiveness in disabled people and sought to break these taboos. You can have a painful life. But then, a mix of health and life complications took a toll and knocked her off the list, temporarily. She took great care to decorate her hospital room so it felt and looked like home.Her parents, Melissa Nordquist Yeager and John Wineland, split up when Claire was 3, but they remained friends and partners in her care.Her father credits Claire with teaching him "to not be afraid of what hasn't happened yet" and to learn to "love what is. It was a welcome, albeit terrifying, development for those who loved her. Shed travel, answer calls for speaking engagements and put energy into her foundation, which she set up at age 13 after coming out of a 16-day medically induced coma. Snap Greene is the alter-ego of 13 year old Claire Wineland. The medical team that tended to her became family. Wineland and a friend, Chynna Bracha Levin, wrote the book Every Breath I Take, Surviving and Thriving with Cystic Fibrosis, published by BusinessGhost, Inc. on Sept. 21, 2012. A post shared by Claire Wineland (@claire.wineland) on Mar 19, 2018 at 11:32am PDT, Life-changing drug cost 'should be lowered', Ukrainian ministers killed in helicopter crash, Maximum two drinks a week, Canada guidance advises, US porn star declared unfit for sex crimes trial. Claire Wineland Dies at 21 After Receiving Lung Transplant Inside Edition 11.4M subscribers Subscribe 69K 2.8M views 4 years ago #InsideEdition YouTuber Claire Wineland, who chronicled. She died on Sunday September 2, 2018, after suffering a stroke following a double lung transplant. ", Claire Wineland, reflecting on her outlook on life. The genetic and progressive disease creates an overabundance of mucus, which traps infections and blocks airways in the lungs. pic.twitter.com/BsTEFmquR7. Wineland was a singer, artist, and composer. Sympathy . She had a popular YouTube channel, gave . I have step parents that are fabulous. But last month, as . In August 2017, after taking a break from YouTube videos for a year, Claire Wineland returned with a new channel. Get breaking news alerts& today's headlines inyour inbox. A post shared by Claire Wineland (@claire.wineland) on Apr 2, 2018 at 4:55pm PDT. But Claire took on the evaluation process to get on the list with laser focus. We would like to show you a description here but the site won't allow us. 2023 BBC. Hap Moran Cause of Death, Age of Death, and Other Facts! real family is great. [3] The foundation offers both emotional and financial support through their Support Families Network andthe Extended Hospital Stay Grants program. Im not dying before I have had a chance to live and what I choose to talk about with the world is not just empty positive falsehoods. Claire Wineland 1997 - 2018 BORN 1997 DIED 2018 CLAIRE WINELAND OBITUARY Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to. Claires parents learned to trust their independent and strong-willed daughter. But not long after the successful surgery, hope turned to fear. She had a popular YouTube channel, gave public speeches, and made appearances on CNN and The Dr. Oz Show. She founded the non-profit Claires Place Foundation to provide emotional and financial support to families living with cystic fibrosis. Life isnt just about being happy. Clip from new video- link is in the bio i explain what happened with the ClairityProject and why I stopped doing YouTube. The Plain Dealer. Claire took the gift of life and her health seriously, but she didnt take herself too seriously. Find an Obituary. . Claire Wineland spent a quarter of her life in the hospital. I mean that seriously, she said with her signature smile and laugh, her eyes not yet dry. According to doctors, she had a survival chance of 1%. James Arness Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! At a 2017 TEDx talk, Ms Wineland spoke about the importance of self-worth when living with a life-shortening illness. Despite facing a life-threatening disease, she always remained positive, smiling and motivated people with her speeches and activities. pic.twitter.com/BsTEFmquR7. Her organs were made available for transplant. [6] She was given a 1% chance of survival and awoke after 16 days.[6]. Claire Wineland was a person who did not like to be pitied. Wineland was moved by the communitys support when she was in coma. She is dynamic and so soul filled, a little angel, rest in Peace Claire, YOU are MY HERO, Your email address will not be published. Go enjoy it, cause there are people fighting like hell for it.. Wineland wrote the book Every Breath I Take, Surviving and Thriving with Cystic Fibrosis and was a TEDx speaker.#ClaireWineland #death #Frostsnow "She had plenty of emotional support, but she worried what transplant surgery might mean for her future and her parents' future if it didn't go well. She never emerged from her medically induced coma. Living a life we can be proud of is something we can control." - Claire Wineland. Updated Menu. [2] Inspired by the community's support while she was in a coma, she launched the 501(c)(3) non-profit to provide support to children with cystic fibrosis and their affected families. They remained close friends, and shared the responsibilities of taking care of their daughter. She listened to the risks and the long list of side effects and emerged unfazed. [2][3] Through her non-profit organization, Claire's Place Foundation, she provided support to children and families affected by cystic fibrosis (CF). Her foundation said she had died peacefully, surrounded by family. Obituaries Section. It was released on the first anniversary of Wineland's death. Despite suffering from a critical illness, she maintained a positive attitude to life. A post shared by Claire Wineland (@claire.wineland) on Aug 7, 2017 at 5:35pm PDT. They saw her into this world for her first breath and were with her for her last, Laura McHolm, the board chair for Claires foundation, wrote in a Facebook post. Claire Lucia Wineland (April 10, 1997 - September 2, 2018) was an American activist, author, speaker and social media personality. Ms Wineland underwent a successful double lung transplant on 26 August, but suffered a stroke shortly afterwards. Claire Wineland became renowned for her posts about illness and mortality on social media A young US woman with cystic fibrosis who made a name for herself through writing, speaking and social. None of it spooked me, Claire said afterward. . Senior producer, Legacy.com. The way sick people are captured in media completely ruined any ounce of self confidence i had growing up. It also complicates digestion, affects the pancreas and other organs and, eventually, leads to respiratory failure. She was 21 years old. She has a younger sister named Ellie Wineland. As she faced the prospect of getting a double-lung transplant, she understood how desperate she was to live and give more. Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given," she said. This time, she was raw and allowed herself to cry. A post shared by Claire Wineland (@claire.wineland) on Mar 19, 2018 at 11:32am PDT, Life-changing drug cost 'should be lowered', Ukrainian ministers killed in helicopter crash, We need to end this war, says Zelensky, after fatal helicopter crash, Iran man who beheaded wife jailed for eight years. The way sick people are captured in media completely ruined any ounce of self confidence i had growing up. By asking for it, she said, she could relax and get in the headspace for whatever would come next.Before signing off, Claire implored viewers to do one thing. She'd also get a butt.She knew that the call could come at any minute, and on August 26, it did. Claire Wineland gained prominence through her positive but realistic account of living with cystic fibrosis. Im grateful for the doctors thatll be scooping out these lungs and giving me some more life to work with. Through videos, she shared her feelings, and her thoughts on cystic fibrosis, and life expectancy. She played hide-and-seek with nurses and left explosions of glitter in her wake. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed.". She has a younger sister namedEllie Wineland. Now that Im looking at it as something I have to do Im willing to deal with anything.. Living a life we can be proud of is something we can control. She revealed that after taking a break from creating videos for some months due to declining health, the company refused to allow her to log into any accounts relating to The Clairity Project. George Steinbrenner Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Living while dying: 'Little Buddha' wisdom from a terminally ill 'goofball'. See yall on [the] other side.. The years of telling myself I can do it on my own are over.. Ive struggled more with guys, depression drugs, family and career than I ever have with my illness. 2.61M subscribers Claire Wineland Dies at 21 and Leaves Beautiful Message Cystic fibrosis activist reveals the most important lesson she learned while living her life in a hospital room. Pink Floyd, The Beatles, The Killers, The Rolling Stones, Ben Harper, Dr. Who, Dexter, Adventure Time, SpongeBob SquarePants, Harry Potter by J. K. Rowling, The Mortal Instruments by Cassandra Clare. She knew that the call could come at any minute, and on August 26, it did. Nipsey Russell Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Really. At one point, Claire looked at her mom and said, After you die, youre closer to everyone you love because youre part of everything, Yeager remembered. I was convinced I looked like an ugly sickly five year old for the first two years of high school and that that was why guys never seemed to be interested in me in that way. Claire was able to save the life of two people, her right kidney was transplanted to a 44 year old woman in San Diego, and her left kidney was transplanted to a 55 year old male in Northern California. Claire suffered a stroke when a blood clot cut off blood flow to the right side of her brain. On August 26, 2018, Wineland suffered a stroke due to a blood-clot that stopped blood flow to the right side of her brain. On September 2, 2018, at 6:00 pm, she took her last breath at the UC San Diego Thornton Pavillion, a week after undergoing a lung transplant. The Extended Hospital Stay Grant program provides financial assistance to families with children experiencing a hospital stay of at least 14 consecutive days due to cystic fibrosis. Read about our approach to external linking. Everything I'm proud of comes from some of the darkest things in my life. Dave Thomas Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Im not an innocent and Im not a child. Your effort and contribution in providing this feedback is much ", Claire took the gift of life and her health seriously, but she didn't take herself too seriously. The US-based Cystic Fibrosis Foundation says more than 70,000 people live with the condition worldwide, She started a YouTube channel in which she spoke about her experiences, Cystic fibrosis drug cost 'should be lowered', Jeremy Renner TV show poster edited after accident, Iran man who beheaded wife jailed for eight years, Celebrities who say their children will get no inheritance, Polar bear kills woman and boy in Alaska village, Baby among six killed in possible cartel hit in US, Keep cake away from office, says food adviser, Graceland estate will stay in Presley family. I'm not an innocent and I'm not a child," she wrote in March. On September 2, 2018, she passed away peacefully, at the 'US San Diego Thornton Pavilion.' Her organs were donated to needy patients. Sick people deserve to be seen as more than hollow shells just waiting for their lives to begin. VideoChess gets a risqu makeover, The Nigerian influencers paid to manipulate your vote, How a baffling census delay is hurting Indians, How Mafia boss was caught at a clinic after 30 years. Find an Obituary . The cause of death was a massive stroke she suffered soon after the transplant surgery. For more information and make a donation, please visit www.clairesplacefoundation.org.Footage courtesy of TV4 Entertainment Inc Claire Wineland's greatest wish, her mother said, was that "her foundation will live on, even in her absence.". The 21-year-old was diagnosed with cystic fibrosis at birth, and was taken off life support on Monday after. She was a wonderful person and the world . A post shared by Claire Wineland (@claire.wineland) on Apr 2, 2018 at 4:55pm PDT. Details of death: Died in San Diego after suffering a stroke following a double-lung transplant. The 2016 Democratic presidential candidate paid tribute to her in a post on Twitter. At the age of 4, she made an appearance in The Music Man. Due to her illness she spent most of her childhood in hospitals. At the time of birth, she had the life expectancy of only 5 years old. Claire's Place Foundation is named in honor of Claire Wineland who lived with CF her entire life and passed away at the age of 21. She grew up in a broken family as her parents got separated when she was 3 years old, but her parents always came together in her care. Details of death: Died in San Diego after suffering a stroke following a double-lung transplant. What if they poured everything into her transplant, and she didnt make it or was not able to work again, she explained later. The progressive disease creates too much mucus in the lungs and other organs, causing infections and problems with digestion. On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. Get to know the real life super hero behind our bubbly Snap identity. Who was Ukrainian minister Denys Monastyrsky? She was chosen to be the keynote speaker at the 63rd International Respiratory Convention and Exhibition. She was a crusader for the patients who suffered from cystic fibrosis, and other terminal illnesses. The family intends to honor her memory by continuing to advance Claires Place Foundation, which she established to financially support others affected by her lifelong disease. Claire Lucia Wineland (April 10, 1997 September 2, 2018) was an American activist, author, speaker and social media personality. Ms Wineland was a supporter of ex-presidential candidate Bernie Sanders, and she once fled hospital to attend one of the Vermont senator's rallies.